YAY! Retained residual hearing after surgery!

I have great news!  Today I had a hearing test that showed I retained the low frequency residual (existing) hearing that I wanted to retain, after the cochlear hybrid surgery.  This tests what the level is right now, not what it may always be.  There is a risk of losing it that remains even after surgery.  But I’m thrilled that today I have low frequency residual hearing and thus will be able to benefit from the enhanced combination cochlear and amplification technology provides for people like me who have high frequency hearing loss, but great low frequency hearing.

Before the hybrid device came along, retaining low frequency residual (existing) hearing was not the focus as the conventional surgery was designed to cover the entire frequency range.  The new surgery offers the possibility of keeping low frequency hearing providing the possibility for people like me to keep my hearing while enhancing the higher frequencies with the implant.

All I can do is take it one day at a time.  If I do lose residual hearing later, the implant can also accommodate me by providing a full range with the implant exclusively.  If that happens, the results still would grant hope for a great experience.

The next step of this journey continues tomorrow as I get the implant activated!

Fatigued thinking

Today marks seven days since I’ve had the hybrid CI operation – the device has not yet been turned on.  This will happen on Wednesday.

Tomorrow is a post-op appointment where the incision is checked, etc.

Anyway, I’ve had pretty good energy up until today.  I just had to sleep.  My brain felt very discombobulated and I was just fatigued.  Thankfully I was able to sleep in quite easily and have peaceful time to myself.

I think everyone has a weird time post-op with any surgery.  The body is adjusting to life and waiting for everything to heal.  I’m also waiting to start the auditory relearning process and figuring out how I fit into this world as I’m able to focus on that for the next few months.

While I enjoy Seattle, I do look forward to life back in Los Angeles.

But this journey is necessary for me to do, because the potential benefits are incredible.

Today I went to the cafe…

Today, I had a nice day out with my mother and sister.  We went to a restaurant – Cactus Mexican restaurant in Madison Park (Seattle, WA) and then a Starbucks.  It was extremely nice to get out and not feel so much like a patient stuck in the house.

As I recover…

I am eagerly anticipating my post-op appointment where the surgery site will be checked out – doing VERY well now.  I’m also looking forward to activation day – April 1st!!!

Right now, I’m still in the recovery phase.  I’m glad to be moving around more now.  But the whole team in the hospital was wonderful and very nice.  I am very lucky to have received such a high level of care.  But I’m getting anxious for the future of course!

My ear feels numb and there are tingly feelings at times.

Today, I’ve been very paranoid about low frequency hearing preservation.  The outcome varies in this regard – even if I lose residual low frequency hearing, the implant can fully compensate for those sounds electronically as it would already for the high frequencies.  I am on a high dose of steroids to preserve the low frequencies as the hybrid is designed to optimize.  There is no guarantee.  Either way, I will be fine.

As for the day the implant is first turned on, I am expecting a bunch of mechanical sounds and beeping.  That day and quite a while after that, the sound often sounds mechanical while the brain makes sense of the new sound.  It’ll be very important for me to follow a rigorous retraining program – formal auditory-verbal therapy (AVT) as well as informal training (books on tape, for example, where I would follow the text in the book and listen to the audio simultaneously).

I am thrilled I have given myself time for this process, as the beginning, especially, is essential to the best possible outcome.  The best outcome is different for everyone and nothing can be known for sure.

I do feel confident things will be better – but how much better remains in the air.  But I’m okay with that as I am glad I did this surgery no matter what!

If I hadn’t done the surgery, I’d be thinking “what if?”

There may be an activation video or there might be one after the activation.  The doctor doesn’t encourage such videos because they can promote unrealistic expectations when it is still the very beginning of the process.  I feel I have a good grasp of expectations: my knowledge that it won’t sound normal yet.  But I will want to do what feels best for everyone.  That may mean I keep the day low-key and write about it afterwards.

Hospital photo!

This photo was taken by my sister in the hospital the day after surgery.  I’ve since taken the gauze off and am very pleased at how discrete the doctor was with my incision!