fbpx
Tel: (323) 819-0747
Email: patrick@patricktullytherapy.com
Home Blog Page 6

Reality

0

The last two days have been filled with pre-op appointments and I must say that it’s quite easy to get worried with surgery; especially an extreme one of this type.

The potential reality that no benefit from the surgery may be achieved has been discussed with me countless times over the last few days.  Even though I’m a candidate, the fact that I haven’t heard certain high frequency sounds makes it impossible to know how my brain will react.  The discussions did lead to my losing it today.  Thankfully, I had the support of my mother during this period and I feel so much better right now.

The retraining process after the surgery will be essential in hopefully making sure my brain doesn’t reject new sounds and instead uses them and distinguishes them.

I also need to be careful how I move for at least a week, as the preservation of low frequency hearing is the point of the hybrid device and certain movements that create pressure in the head can cause the low frequencies to be damaged.  So I need to be careful in so many ways.

I can’t lie and say this is not overwhelming for me.  It is tough.  But I truly believe the surgery will go really well and eventually the risk will be worth the benefits.  It will likely take a lot of formal retraining sessions and time, but I look forward to the journey.

Home

1

I’m now in Seattle and this week consists of pre-op appointments.  Surgery is next Monday, the 23rd!  I also just learned that activation day – the first day I hear with the implant on will be just a week after surgery – April 1st. Plenty to process 😉

The Flashbacks

0

As I write this, I’m preparing to go to sleep after a day of inner-confusion.  I’ve had feelings of fear and nervousness about the upcoming surgery and also flashbacks to when I was younger and less sure of myself.  Growing up in a world where most people do not have hearing loss was difficult.  I remember clearly working on a group project and being ignored by other peers as I tried to offer suggestions – this was in high school.  Today, the memory suddenly rushed to my brain and became very vivid and served as an important reminder of when a similar situation does happen now, how differently I handle that.

But still, I think back at the oddity of this such situation.  If you know me, you know I can hear and I am very capable with projects.  It’s odd these people in the group assumed, even with my speaking out, that I was worthless.  Now, today I know I am not worthless, but back then I was much younger and didn’t have the skills to look at the situation objectively or with a lens other than self-defeat.

Today, if I was in that same chair with the group, I would speak up after being ignored and bring in the teacher to point out the absurdity of the situation to him and to the other group members.  I wasn’t dumb.  Advocate for myself then? – No, I was too scared. – Now?  Absolutely I would.

Anyway, writing this has already lifted a burden off my shoulders as similar situations have also presented themselves as mental flashbacks to a time when I was less capable of handling a heart wrenching situation.  I wasn’t able to see that I wasn’t defective.  Now I KNOW I’m not defective and I know my strengths.

Thanks for reading and for reading about some of my self-care (including dealing with inner-feelings as demonstrated here) as I prepare to fly to Seattle on Monday!

Voice coaching today

0

Today I met with my favorite voice coach of all time, Patrick Muñoz, who works with everyone from performers, business people, and people who just wish to speak better.  His website is: http://www.thevoicezone.net.

I want to say thank you to Patrick Muñoz for being a supportive person in my life who follows his passions.  He has truly been inspirational and is a great person to know.

I have experienced emotions as I have gone through this journey of preparing for surgery and today elicited emotion as well.  I am again very happy he is a part of my life.

We spent the day talking about the device and the journey and the many unknowns (eg. how much benefit one gets from a device such as this is not set in stone).

I wanted to test my pitches using the piano (matching pitch to scale) and see if perhaps after surgery things would change.  As expected, my low pitches are very good while my high frequencies are quite hard to reach accurately.

I should say here that the cochlear implant device is not designed to restore hearing in such a way that music is greatly enhanced… rather speech understanding is the goal.  It’s a mechanical device that can’t replicate what the natural ear can.  But I’m thrilled to be on this journey with Patrick because one never knows what might happen and what the benefits will be afterwards.

So, today included an informal test. 😉

The Hybrid and Music

0

The fact I have great low frequency hearing is why I am qualified for the newer hybrid cochlear implant rather than a traditional one.  A hybrid does not go as far into the cochlea (where the hair cells are) and focuses on the high frequencies.

There are so many benefits to retaining natural low frequency hearing and that’s a big reason why the hybrid device is so revolutionary.  This includes music appreciation, which with conventional cochlear implants has demonstrated poor results.  Because my low frequencies will remain intact, my music appreciation will continue and be enhanced by the added high frequencies of the cochlear implant.

Feelings…

4

The Cochlear Hybrid surgery I’m having soon is constantly on my mind. It’s exciting and frightening and has caused me much anxiety at times. I admit sleeping has been difficult. I appreciate the people in my life who distract me from such thoughts. School has also been a blessing during this time. I will be leaving the 16th of March and having surgery the 23rd of March.  Thank you all and I appreciate the support before I leave… and I look forward to continuing to see people when I return as well!

Insurance approval!

0

My insurance approved my Cochlear Hybrid surgery today!  I am so thrilled and lucky!  This is a new procedure, with the implant focused only on the high frequencies, and thus there can be a back and forth between the insurance and doctors that takes a while.  Well, the procedure was approved without any of that interference and I am so glad I can now say that I will be implanted in March!

Whew!  What a relief!

My journey starts soon…

0

Hello everyone!

I have been embarking on a special journey.  I have just been implanted with the newly FDA approved Cochlear HYBRID hearing implant, designed for people like me who have a high frequency hearing loss.  After following the development of the implant for several years, getting testing, and finally becoming an official candidate, I was implanted on March 23, 2015!

The Cochlear Hybrid was just approved in March of 2014, after about 15 years of development.  Thank goodness there is an option for people who don’t have total hearing loss, but are not satisfied with what hearing aids can provide. After following the development of the implant for several years, getting testing, and finally becoming an official candidate, I was implanted on March 23, 2015!

The most common area of the cochlea that hearing loss affects is the high frequencies.  When this area becomes severe enough, the gain provided by hearing aids is simple not enough to compensate for the loss. The hybrid’s electrical stimulation helps to compensate for these lost frequencies – it doesn’t restore things back to normal, but rather enhances sound.

Here are a couple of links about the hybrid cochlear implant from Cochlear’s website.  I encourage you to check them out:

http://www.cochlear.com/wps/wcm/connect/us/home/N6hybrid/index.html

I have a mild loss in my lowest frequencies that increase as the pitches get higher.  This means I have a loss in speech discrimination as sounds sound similar when there are fewer high frequencies to help the brain distinguish between certain words. A lot of speech to sound muffled and requires a lot of concentration and energy to have a group conversation.

Like I said, this implant is designed for people like me who have high frequency hearing loss as opposed to total or near total hearing loss across all the frequency ranges, which has been the only surgical option up to this point. I do not qualify for this more intense implant because of my excellent low frequency hearing.

After I finish the Winter 2015 quarter at my university (I am studying psychology and will be fast-tracking into the Masters in Clinical Psychology program), I will be taking a leave of absence for six months from Antioch in order to allow time to get used to the new sounds – this requires retraining so the brain understands more sounds. Making an exact time frame when retraining after surgery is required is frequently a guessing game, but after consulting with the surgeon at this point the time frame seems right to me.

This surgery should significantly improve my hearing in my right ear (where I am having it implanted), but won’t completely cure the hearing loss. I have kept this blog active ever since I learned of my surgery around the holidays in 2014.  I wanted to share this news with everyone as being formally approved for this new device was a true holiday miracle!

There is no cure for hearing loss.  The fact that I have always had a high frequency hearing loss will likely mean formal auditory retraining therapy coupled with less formal forms will be extremely important to help my brain understand the new high frequency sounds.  The outcomes vary for everyone and the brain is always going to be learning new sounds for life.

I know a lot of people also have that “feeling different” experience for a multitude of reasons so I am not alone with having something that has made me feel “different.” Hearing loss has been a blessing in disguise for me as it connects me to people who also have trouble following the dominant societal discourse, or like me, don’t want to and hate the pressure to do so. Thank you everyone!

 

Please stay tuned here for updates as I plan to keep everyone in the loop.

Feel free to spread the word of this blog to everyone as my hope is to inspire or help anyone in whatever way.  I’ve lived with hearing loss my entire life and I’m glad to be embarking on this journey.  It doesn’t matter what you’ve been through, we all can do what we want to do!
The process of the implant included:
1) Formal candidacy and meeting for surgery
2) Pre-Op appointments to prepare for surgery and after-care.  Discuss realistic expectations.
3) The actual surgery.
4) Start healing and have the implant and external processor (similar to the design of a hearing aid) be activated shortly afterwards (a little over a week later for me)
5) Continuous re-programming of device and formal / informal retraining to learn new sounds (they come in as electrical signals that stimulate the auditory nerve; the brain, with time, learns how to decode these signals as normal sounds)
6) Continue to practice and learn new sounds; continue reprogramming of device

The journey begins soon!

0

This blog will document my progress as I go through the surgery, activation, and retraining involved with a Cochlear Hybrid implant. This implant is indicated for people who have high frequency hearing loss and was approved by the FDA in March of 2014 after about 15 years of work to get to that point.

Call Now
Directions